It’s amazing to me when there are reasons for things. Most of the time, I am tempest tossed, continually bewildered to learn that effects have/had causes. My body is a mystery to me, even now, thirty-some years into having the one I was born with. I talked to my doctor today and all the strange things that have been happening to me for the past three months suddenly made sense.
First, the strange things:
- My ice-eating has become almost compulsive. In the past two weeks especially. I crave ice all day. It’s so weird. I wake up in the morning excited about my first glass of ice. It’s never been like this. (I thought I was just being a weirdo.)
- When I stand up, I have to hang onto something or stay very still for a moment and breathe, otherwise, I’ll stumble and maybe fall. (I thought maybe it was the medicine I’m on.)
- I’m short of breath. (I thought I was just out of shape.)
- Even thinking about doing a cardio workout makes me tired. (I thought I was just lazy.)
- When I sleep, I am out in .2 seconds. When I wake, it’s like emerging from the grave — I have no sense of the night, no sense of having slept, no sense of feeling rested. (I thought I was just behind on sleep.)
- My limbs are weak-ish. (Any ideas?)
- Diet Coke is back in my diet because if I don’t drink a couple throughout the day (with ice, of course), I can’t make it. (I thought I was just more addicted to caffeine than usual.)
- Without foundation and a good amount of blush, “washed out” didn’t quite describe my complexion. (I just thought I was a white girl who had just been through a Chicago winter.)
- I’ve been blue. (Who isn’t?)
Now, a quick pop quiz, remembering that I call my “hemoglobin” my “hemogoblins”:
Q: What’s a normal hemogoblin level in an adult female?
Q: How low does an adult female’s hemogoblin level need to fall before she needs a blood transfusion?
Q: What’s Mary’s hemogoblin level right now?
This explains everything. I’m so tired. I haven’t been posting as much as I usually do because I’m just so tired. I try to make time for everything but it’s like working through mud, sometimes. There’s so much to do, and I was consciously and subconsciously doing the Have To’s and not all of the Very Much Want/Need To’s.
The reason I’m not getting a blood transfusion right now is that my insurance company won’t approve it unless I hit 7. The plan, therefore, is to get an iron transfusion approved and do that first. Me, I’d rather have the blood. Let’s cut to the chase, gentlemen. But it would probably be unwise to twiddle my pale, anemic thumbs until I dip lower and then do my best vampire impression, so I’ll take the iron infusion when they give the go-ahead. That should help. It’ll also cost $750 a pop, even with the insurance, and it usually takes two. Super.
Can I tell you something that is very honest?
I had a moment today after I got the Anemia Update and I wished I was at 5. Because if I was at 5, maybe I could be admitted for a night. Maybe even two. And I could just rest. No one would question it. Not even me.
That’s messed up, I guess. But sometimes, it’s like… It’s like you just need to get off the bus and have someone come in and take your vital signs and help you to the bathroom and bring you gingerale in a little cup with a foil lid.
Maybe you know what I mean.